Menkes Tips: What worked for us
- Try Mam bottles with the "x" nipple.
- Try Enfamil Nutramigen Premade Liquid Cans of formula with one teaspoon of baby oatmeal added per ounce.
- The secret to administering all meds is to mix it with a tiny bit of formula and then put it in the nipple for the bottle, the nipple is detached and used like a tiny medicine cup. So first have him drink that, sucking like a paci, and then give him the rest of his bottle. I learned this from a palliative care nurse and it worked great for TJ.
- Anything meds that can go in the mouth can go in the bottom, for days he won't eat.
- Take a million pictures and then take a million more!
- A wipe warmer may be one of his few luxuries, it's time to invest in one.
- Enjoy your little guy, there will be plenty of time for everything else later.
- Make lots of memories!!
- Check out this website: http://www.courageousparentsnetwork.org
- Get a Fisher-Price Rock n' Play today. You can thank me later.
- Now's the time to ask for and accept help.
- Order the book The Gift of the Ladybug. I promise, it's worth it!